Today's Slogan & Life Update

"Don't worry, Taryn takes care."

That's pretty accurate - I'd say I require a lot of care!

What's new lately? Let's see. I seem to have horrible reactions to every new medication I take. The latest was Sulfazine. I developed a mild, unconfirmed case (confirmation would require a biopsy) of .Stevens-Johnson Syndrome. I'm very thankful I didn't get a severe case! (In severe cases your skin can slough off like you've had thermal burns and it can be fatal.) Yuck! As though I need another brush with death - no thanks! Despite the lack of a biopsy, my rheumatologist said I should consider myself allergic to Sulfa drugs. Great!

So, having already experienced nasty side effects with Imuran, that means I now have to try Methotrexate. It's the only one left. (I'm already on Mercaptopurine but can only take 50 mg or else my liver levels start to rise. I certainly don't need liver problems in addition to everything else!) I dread starting Methotrexate! Despite taking Zofran, an anti-nausea medication, twice a day, I still have trouble with nausea on and off. And in my mind Methotrexate = nausea/puking! Both my mother-in-law & sister-in-law are on this medication.

I'm waiting on the results of my CBC, ANA, and cortisol levels to find out if I have adrenal exhaustion. That might be the answer to why I have narcolepsy/hypersomnia - since we know I don't truly have narcolepsy! After reading the detailed symptoms list, I was like, "YES - THIS SOUNDS LIKE ME!" (I also think I have Wilsons Sydrome (low temperature) which can often go along with this.) I would love to have an answer and then hopefully a solution! However, my neurologist still wants me to do another sleep study to see if gaining weight (from the stupid steroids) is causing apnea, making me more tired. I only have to do the polysomnagram (night study), not the MLST (daytime nap study). However, it's still a pain!! I'm not looking forward to it at all!!

That's enough for today. I need to balance the checkbook and pay some bills before my headache gets any worse.

Take care and enjoy your health!